June 3, 2010
Well, it has taken quite a while to do any updates due to the pain that typing puts me in but, with some help, I was able to make updates to the "Community Resource Guide". I have added additional medical and prescription resources! Please, if anyone finds a good article or knows about any new meds that are being tried, please forward them to me as I do not get to search the internet like I used to! Thank you so much and I hope that the resource guide helps you!
Posted by Christina Skywater.
December 11, 2009
Well, it is a start! Today, I added a couple of new prescription resources to the Community Resource Guide page. Please, if there is anyone out there that would like me to list something specific to the website, let me know! From the conception of this website, I have asked for public participation and would love input from others! Thank you! Continue reading...
Posted by Christina Skywater.
May 12, 2009
Hello Everyone! I have been working on the nonprofit since November 2008. At times, being short on donations, I have contributed my own money to keep it going. Unfortunately, due to my being unable to work, I can no longer sustain the organization by myself and due to the economy, I have not received any donations or candle orders. I will continue the website and continue to add resources to it but will be unable to help anyone financially as I had planned. I will also continue to sell the... Continue reading...
Posted by Christina Skywater.
March 21, 2009
Under the "Community Resource Guide" tab, I have added a link to a clinical trial that is being conducted on fibromyalgia patients in the U.S. Just follow the link to their website to see if you are eligible for the study! Continue reading...
Posted by Christina M..
February 21, 2009
Wow! My resource page is getting so long that I think I am going to have to start an additional page for them! I have added utility/heating, telephone and food resources. I hope that this is useful! Thank you! Continue reading...
Posted by Christina M..
February 19, 2009
Hello Everyone! I just wanted to let you know that I have added housing and emergency housing resources to the info and resources page. I know that times are tough and we all need as many resources as we can find! And please, if anyone has a specific need and wants help to find information or resources, feel free to contact me and I will help in any way that I can! Thank you so much! Continue reading...
Posted by Christina M..
February 7, 2009
Hi everyone! I hope at this writing, everyone is doing well! I have added a link in the "Informative Fibromyalgia Website Links" section, to an article about Savella, the newest drug to be endorsed by the FDA for use on individuals with fibromyalgia. In the "Info and Resources" section, I have also added some great links on financial assistance for medications and a plethora of resources through the National Fibromyalgia Association Resource Directory. There is a little something for everyo... Continue reading...
Posted by Christina M..
December 16, 2008
This last weekend, I paid tribute to fibromyalgia and withstood the pain of getting a tattoo. My awareness ribbon will forever be with me. The tattoo artist did a great job!  Continue reading...
Posted by Christina M..
December 16, 2008
Because some of us that suffer from Fibromyalgia also suffer from Myofascial Pain Syndrome (even if you don't yet know it, symptoms may sound familiar), I have added a Myofascial Pain Syndrome information page. I hope that this new page is of great information for you! Continue reading...
Posted by Christina M..
November 24, 2008
For anyone thinking of getting rid of your purse because of the strain on your shoulders, I highly recommend the Buxton "Pocketbook". It is a "Seen on T.V." item that is available at Walgreens for $20.00. It does not look like it holds very much but, let me tell you, it holds a lot! AND no more strain on your shoulders! Give it a try! I love it and I hope that you will too! Here is a link to the "official" website. At Walgreens, they only offer the color of black, this website also offer... Continue reading...
Posted by Christina M..
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About Me
Hi, my name is Christina. I am a 42 year old mother of 3. (Daughter 26, son 21, step-daughter 9). I also became a grandma twice this year! In July, my first granddaughter was born to my daughter and in October, my second granddaughter was born to my son!
This is my fibromyalgia story....
In 2005, my symptoms started. For 3 years, I went from doctor to doctor, trying to determine why I was getting excruciating headaches, pain in my hips, shoulders and neck. I was given X-rays and MRI's on several occasions by several different doctors. I was told that nothing was wrong with me. I was in the emergency room at least every other week, hoping that somehow, someone could help me.... The last doctor that I had before I was diagnosed with fibromyalia, wrote me off as having migraines, looked at me and said, "I really think that this is all in your head"!
She sent me to a neurologist who, even after hearing my symptoms, again diagnosed me with migraine headaches and continued to "treat" the headaches even though the treatment wasn't working. Finally, totally fed up, I went to him with a LIST of my symptoms. Something that he could hold, something that he could read. He looked at me and said, "these are absolutely not migraine headaches, this is fibromyalgia". Thank goodness! We finally had something to work with!
Soon after, he let me go as a patient as he had "done his job" in treating the "migraines". He told me that if I wanted to be treated for fibromyalgia, I would have to see a specialist in that field (rheumatologist) and also work with my primary doctor. I was WAY ahead of him. I had an inkling that it might be fibromyalgia that I had, so I had already set up an appointment with a rheumatologist. She didn't do much for me but confirm the fibromyalgia. I was officially diagnosed in June of 2008!
My primary doctor was great! He worked with me to keep me as pain free as possible but that was a very hard task, as I not only had fibromyalgia, but myofascial pain syndrome also.
Anyway, since the diagnosis, I have become an avid researcher of fibromyalgia and myofascial pain syndrome and I want to educate as many people as I can about these debilitating conditions.
Thank you!
UPDATE: In March of 2009, I relocated back to WA State. Since I relocated back to WA, I have had a really hard time. I could not get state medical here so I did utilize some of the prescription programs from my Community Resource Guide and I found a doctor that takes sliding fee scale (a percentage of my income). My primary is trying to find a regimen of meds for my fibro but, the meds that I am on, do not take care of the myofascial pain.
I am thrilled that I finally qualify for state medical and can now get the help that I need!
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