October 31, 2008
Welcome to my website! I would like to invite anyone that may view this website to participate in the ongoing growth of the website. If you are interested, please send me your "personal fibromyalgia story", a picture for the "faces of fibromyalgia" page, write an article, etc. Please email me at fundraisingforfibro@yahoo.com
Tina Marie Skywater
~A good exercise for the heart is to bend down and help another up.....
Posted by Christina M..
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About Me
Hi, my name is Christina. I am a 42 year old mother of 3. (Daughter 26, son 21, step-daughter 9). I also became a grandma twice this year! In July, my first granddaughter was born to my daughter and in October, my second granddaughter was born to my son!
This is my fibromyalgia story....
In 2005, my symptoms started. For 3 years, I went from doctor to doctor, trying to determine why I was getting excruciating headaches, pain in my hips, shoulders and neck. I was given X-rays and MRI's on several occasions by several different doctors. I was told that nothing was wrong with me. I was in the emergency room at least every other week, hoping that somehow, someone could help me.... The last doctor that I had before I was diagnosed with fibromyalia, wrote me off as having migraines, looked at me and said, "I really think that this is all in your head"!
She sent me to a neurologist who, even after hearing my symptoms, again diagnosed me with migraine headaches and continued to "treat" the headaches even though the treatment wasn't working. Finally, totally fed up, I went to him with a LIST of my symptoms. Something that he could hold, something that he could read. He looked at me and said, "these are absolutely not migraine headaches, this is fibromyalgia". Thank goodness! We finally had something to work with!
Soon after, he let me go as a patient as he had "done his job" in treating the "migraines". He told me that if I wanted to be treated for fibromyalgia, I would have to see a specialist in that field (rheumatologist) and also work with my primary doctor. I was WAY ahead of him. I had an inkling that it might be fibromyalgia that I had, so I had already set up an appointment with a rheumatologist. She didn't do much for me but confirm the fibromyalgia. I was officially diagnosed in June of 2008!
My primary doctor was great! He worked with me to keep me as pain free as possible but that was a very hard task, as I not only had fibromyalgia, but myofascial pain syndrome also.
Anyway, since the diagnosis, I have become an avid researcher of fibromyalgia and myofascial pain syndrome and I want to educate as many people as I can about these debilitating conditions.
Thank you!
UPDATE: In March of 2009, I relocated back to WA State. Since I relocated back to WA, I have had a really hard time. I could not get state medical here so I did utilize some of the prescription programs from my Community Resource Guide and I found a doctor that takes sliding fee scale (a percentage of my income). My primary is trying to find a regimen of meds for my fibro but, the meds that I am on, do not take care of the myofascial pain.
I am thrilled that I finally qualify for state medical and can now get the help that I need!
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