Education, Support & Advocacy

 

Many fibromyalgia websites just repeat what all of the other websites say.  I have provided links to some of the most educational websites that I have found.

Education:

This is THE BEST article that I have ever found that explains fibromyalgia in a simplified way to friends and family:

http://chronicfatigue.about.com/od/whatisfibromyalgia/a/understandfibro.htm

Another great article from WebMd with a plethora of fibromyalgia information.

http://www.webmd.com/fibromyalgia/fibromyalgia-what-you-need-to-know/default.htm?ecd=wnl_cbp_110608

Other informative websites:

The Mayo Clinic: http://www.mayoclinic.com/health/fibromyalgia/DS00079

National Fibromyalgia Association: http://www.fmaware.org/site/PageServer?pagename=fibromyalgia

Fibromyalgia Network News: http://www.fmnetnews.com/

National Fibromyalgia Research Association: http://www.nfra.net/

The FMS Community: http://www.fmscommunity.org/

Lifetips: http://fibromyalgia.lifetips.com/

John Hopkins: http://www.hopkins-arthritis.org/arthritis-info/fibromyalgia/

Ask the Doctor Checklist: http://www.aolhealth.com/health-concern/ask-the-doctor-checklist

10 Signs to Dismiss Your Doctor: http://www.aolhealth.com/health/10-signs-to-dismiss-your-doctor

Publications:

Fibromyalgia & Chronic Myofascial Pain Syndrome : A Survival Manual   

Written by Mary Ellen Copeland, M.S., M.A. (Author) and Devin Starlanyl, M.D. (Author)

Your Symptoms Are Real – What To Do When Your Doctor Says Nothing Is Wrong

Written by Benjamin H. Natelson, M.D. (Author)

Fibromyalgia For Dummies

Written by Roland Staud, (Author) and Christine A. Adamec

Support

It is almost impossible to find “live” support groups to join but you can go to www.google.com to try and find one in your area.  Otherwise, there are some great online support groups.

My favorite support group is WebMd.

http://boards.webmd.com/webx?14@@.5987f42a

Listed here are several more support groups.  Some are established groups, others are “start-ups”.

http://health.groups.yahoo.com/group/fibro_itsnotallinyourhead/join

www.co-cure.org/addtalk.htm

www.fmscommunity.org/ng_lists.htm

http://health.groups.yahoo.com/group./fibrocafe

http://www.fmscommunity.org/fibromlhelp.htm

Fibromyalgia Advocacy, Awareness and Fundraising:

AFFTER (Advocates For Fibromyalgia Funding, Treatment, Education and Research): 

www.affter.org

CD proceeds to be donated to AFFTER to help fund fibro research: 

http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile&friendid=77379153